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Autoimmune diseases are quite distinct from inherited retinal dystrophies.

As a coalition of sight loss charities, we are calling on the Government to make the benefit system and employment support fit for purpose for blind and partially sighted people.

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Catherine L’Estrange, aged 11 from London has become the first individual in the UK to receive an investigative gene therapy treatment for retinal dystrophy associated with the BBS10 gene.

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Thank you to all those who completed our recent Sight Loss Survey – almost 700 of you took the time to share your experiences.

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Beacon Therapeutics has announced positive results from its phase 2/3 VISTA trial of laru-zova, an experimental gene therapy for X-linked retinitis pigmentosa (XLRP). The findings mark a significant step forward for a condition that currently has no approved treatments.

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• Retinitis pigmentosa

The team have found the cause of disease in the first ever family tree drawn up at Moorfields Eye Hospital over 35 years ago, which had remained unsolved until now.

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• Retinitis pigmentosa

Inside: Our intrepid Sahara Trek #TeamRetinaUK tell us about their incredible experience. 2026 is now fully underway and we are excited to tell you about our plans. Could you take part in a challenge event or volunteer to do a bucket collection in London for Retina UK?

• Look Forward
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Prof Mariya Moosajee at Moorfields Eye Hospital has asked us to share the message below about the clinical trial she is running. This trial is for a treatment that targets a particular section of the USH2A gene.

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• Usher syndrome

Choroideremia is a rare genetic condition resulting in progressive sight loss in men.

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• Choroideremia

Our community is informed and knowledgeable about current research projects into the cause(s) of and treatments for these conditions.