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Please get in touch with us using the method which suits you best. You'll find details of all of the different ways you can contact us on this page.
Rod-cone dystrophy is an umbrella term used to describe retinal conditions in which the rod-shaped photoreceptors, found mainly in the peripheral areas of the retina, degenerate ahead of the cone-shaped photoreceptors in the centre.
These very rare syndromes(NARP, Bassen-Kornweig, PXE, Norrie) affect the eyes as well as other parts of the body.
Charles Bonnet syndrome (CBS) causes people who have lost a lot of sight to see things that aren’t real (hallucinations).
In this condition, retinitis pigmentosa is accompanied by progressive neurological problems, abnormal red blood cells (acanthocytosis) and defective bowel absorption of fat, leading to very low blood levels of cholesterol and absent beta lipoprotein (Abetalipoproteinaemia).
Bardet-Biedl syndrome (BBS) is an inherited condition which impacts many parts of the body including the retina.
Come together for Retina UK Day on Thursday, 10 October 2024 and help us raise awareness and funds for those who are living with inherited sight loss.
Take on the Brighton Marathon with a seaside finish!
May is National Walking Month! Are you ready to join #TeamRetinaUK in May for our brand new daily 5K challenge? Your support will allow us to continue supporting those who are living with inherited sight loss.
As well as many of the well known races, we also have places available in hundreds of local runs. Wherever you live, you can run as part of #TeamRetinaUK!