Achromatopsia
Achromatopsia is a rare hereditary vision disorder affecting approximately 1 in 30,000 newborn babies.
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Local peer support groups
Our Retina UK Peer Support Group network offers information and support via regular meetings both online or in-person.
Contact our Helpline
The content on this site will have answered some of your queries about inherited sight loss and associated syndromes, but everyone’s circumstances are different and you may have further questions.
Cataracts and Macular Oedema
Cataracts and macular oedema are both associated with inherited sight loss and may respond to treatment.
Run Locally
As well as many of the well known races, we also have places available in hundreds of local runs. Wherever you live, you can run as part of #TeamRetinaUK!
London Landmarks Half Marathon 2025
Could you run the London Landmarks Half Marathon 2025 for #TeamRetinaUK?
RideLondon 2025
Could you take part in RideLondon 2025 for #TeamRetinaUK?
Coming soon
Our Peer Support Groups are growing. Find out more about what's planned for the future.
Brain stimulation may reduce hallucinations
UK researchers have discovered that passing a weak electrical current between electrodes on a person’s scalp may lead to a reduction in frequency of the visual hallucinations experienced by some people living with sight loss.