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Aged 20, James was diagnosed with retinitis pigmentosa at a routine eye appointment in September 2015 and registered partially sighted, just prior to buying his first car and taking his driving test.

• Case study - community
• Written

My name is Mark Baxter and from an early age I was diagnosed with a deteriorating retinal eye condition called retinitis pigmentosa or RP for short, which will slowly lead to blindness.

• Case study - community
• Written

Our West Yorkshire peer support group recently welcomed The Blind Poet, Dave Steele, who is living with retinitis pigmentosa, to their meeting. He talks candidly about his diagnosis, his poetry and his optimistic mindset. 

• Podcast
• Audio

Dan found out he had retinitis pigmentosa in February 2022, but he feels it has been “on cards for years”. He said he had “an inkling something was up but never did anything about it: a typical guy I guess!”

• Case study - community
• Written

The cover of this edition celebrates the success of our amazing London Marathon team. Together they have raised more than £43,000.

• Look Forward
• Audio
• Written

Steve is a Paralympian who was diagnosed with retinitis pigmentosa (RP) in 2011.

• Case study - Ambassador
• Written

Roger has retinitis pigmentosa, as do his son, mother and grandfather. He was officially diagnosed aged 16.

• Trustee
• Written

Beacon Therapeutics announced positive results from their phase 2 gene therapy trial for X-linked retinitis pigmentosa (XLRP) caused by mutations in the RPGR gene.

• News
• Retinitis pigmentosa

Retina UK is delighted to announce that it has awarded three new research grants worth more than £870,000.

• News
• Leber congenital amaurosis (LCA)
• Retinitis pigmentosa

A virtual delegate bag for our online attendees - Professionals' Conference 2024