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Our West Yorkshire peer support group recently welcomed The Blind Poet, Dave Steele, who is living with retinitis pigmentosa, to their meeting. He talks candidly about his diagnosis, his poetry and his optimistic mindset.
Dan found out he had retinitis pigmentosa in February 2022, but he feels it has been “on cards for years”. He said he had “an inkling something was up but never did anything about it: a typical guy I guess!”
The cover of this edition celebrates the success of our amazing London Marathon team. Together they have raised more than £43,000.
Steve is a Paralympian who was diagnosed with retinitis pigmentosa (RP) in 2011.
Roger has retinitis pigmentosa, as do his son, mother and grandfather. He was officially diagnosed aged 16.
Beacon Therapeutics announced positive results from their phase 2 gene therapy trial for X-linked retinitis pigmentosa (XLRP) caused by mutations in the RPGR gene.
Retina UK is delighted to announce that it has awarded three new research grants worth more than £870,000.
Emily Kearney is mum to four boys, aged four to 13, two of whom are living with an inherited sight loss condition.
Next month, Anisha and Sheena will take on The Thames Path Challenge. Together, they explain why they decided to join #TeamRetinaUK.
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