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The difference we made in 2022

• Impact Report
• Audio
• Written

The difference we made in 2023.

• Impact Report
• Audio
• Written

You can download the last three years’ Trustees’ Annual Report & Accounts. They are also available on the Charity Commission website.

• Impact Report
• Written

Refsum syndrome is an inherited metabolic condition, associated with elevated phytanic acid plasma levels, which impacts many body systems.

A recording of the Retina UK Professionals' Conference on 27 September 2024. The Conference was held at the Pendulum Hotel in Manchester and online.

• Conference
• Audio
• Video

Usher syndrome is an inherited condition that affects both hearing and vision.

We carried out our first Sight Loss Survey in 2019 and used what we learned to improve our support. It was repeated in 2022. These are the findings.

• Audio
• Written

A recording of the Retina UK Annual Conference on 28 September 2024. The Conference was held at the Pendulum Hotel in Manchester and online.

• Conference
• Audio
• Video

Many research studies could not take place without the participation of people living with inherited sight loss.

Bardet-Biedl syndrome (BBS) is an inherited condition which impacts many parts of the body including the retina.