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Join the Retina UK membership today! Anyone is welcome to join; whether you are living with a sight loss condition yourself, related to somebody who is, or if you are working as a sight loss professional.

X-linked retinoschisis (XLRS) is an inherited condition that causes early loss of mainly central vision in males.

A recording of the Retina UK Professionals' Conference on 19 September 2025. The Conference was held at the Holiday Inn, Regent's Park, London and online.

• Conference
• Video

A recording of the Retina UK Annual Conference on 20 September 2025. The Conference was held at the Holiday Inn, Regent's Park, London and online.

• Conference
• Audio
• Video

The Retina UK Professionals’ Conference is aimed at anyone who works with our community in a professional capacity. Free to attend.

• Conferences
• Online

Since we were founded in 1976, we have invested more than £18 million into some of the most pioneering medical research - because of amazing supporters like you.

Please get in touch with us using the method which suits you best. You'll find details of all of the different ways you can contact us on this page.

The Retina UK Annual Conference will be held in September. You can join the Conference in-person or online. Free to attend.

• Conferences
• Online

Our sight loss survey highlighted that you have a real appetite to get involved in representing the inherited sight loss community through activities like focus groups, surveys and research projects via the Retina UK Lived Experience Panel.