Meet our volunteers: Daniel Summers
Dan found out he had retinitis pigmentosa in February 2022, but he feels it has been “on cards for years”. He said he had “an inkling something was up but never did anything about it: a typical guy I guess!”
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Dan found out he had retinitis pigmentosa in February 2022, but he feels it has been “on cards for years”. He said he had “an inkling something was up but never did anything about it: a typical guy I guess!”
The cover of this edition celebrates the success of our amazing London Marathon team. Together they have raised more than £43,000.
Steve is a Paralympian who was diagnosed with retinitis pigmentosa (RP) in 2011.
Roger has retinitis pigmentosa, as do his son, mother and grandfather. He was officially diagnosed aged 16.
Beacon Therapeutics announced positive results from their phase 2 gene therapy trial for X-linked retinitis pigmentosa (XLRP) caused by mutations in the RPGR gene.
Retina UK is delighted to announce that it has awarded three new research grants worth more than £870,000.
Emily Kearney is mum to four boys, aged four to 13, two of whom are living with an inherited sight loss condition.
Next month, Anisha and Sheena will take on The Thames Path Challenge. Together, they explain why they decided to join #TeamRetinaUK.
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In this episode Laura and Mark talk about their dreams and how they see the world in sleep. Mark is living with retinitis pigmentosa so his sight has deteriorated over his life, whereas Laura lost her sight at a very young age. They also briefly cover Charles Bonnet Syndrome (CBS).