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Whether you are looking for practical information or emotional support, online, by phone or face-to-face, we’re here to help.

There are many ongoing clinical and laboratory studies around the world, exploring innovative approaches to treating inherited sight loss.

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The aim of the site is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.

Inside this edition, set yourself a challenge in 2024, plus find out about our brand new lottery.

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Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.

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Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.

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In 2014 we funded an exciting new collaborative project. The UK Inherited Retinal Dystrophy Consortium (UKIRDC) Project brought together the four largest research groups in the UK specialising in inherited retinal diseases (IRDs).

Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.

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The BBC World Service has undertaken an investigation of unproven treatments for retinitis pigmentosa (RP) and has produced a documentary film, called Blind Faith, which is available on BBC iPlayer.

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• Retinitis pigmentosa

Our monthly e-Newsletter featuring the latest updates from Retina UK.

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