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We provide funding for innovative, high quality research projects investigating the causes and potential treatments for all forms of inherited retinal disease.

Download our School Fundraising Pack below to find out how you can raise money for Retina UK and have loads of fun in the process.

Kathy joined Retina UK as Chair of Trustees in September 2024.

• Trustee
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These are some of the most commonly asked questions about genetic testing and counselling.

Are you supporting someone with inherited sight loss? We are here to help.

James was part of #TeamRetinaUK in 2020 when he took part in the first ever Virtual London Marathon. He talks about his experience and his motivation.

• Case study - supporter
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A guide for professionals. Retina UK is a national charity. We offer information and support to people affected by inherited sight loss to enable them to lead better lives today and fund medical research to accelerate the search for treatments for the future. We also support professionals working with them.

• Leaflet
• Audio
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The aim of the site is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.

Genes exist inside all the cells that make up your body. They contain genetic code (DNA) and provide instructions for constructing proteins, which are the building blocks of our bodies and perform a huge variety of roles.

The aim of these pages is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.