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Saturday 12 October, 10.30am - 3.30pm - In-person - Come and join the Hampshire group for a visit to the Tudor House and Garden in historic Southampton, followed by a pub lunch.

• Local peer support group

Colin McArthur re-joined the board in 2024 after serving as a trustee between January 2008 and September 2019.

• Trustee
• Written

Dr Nikolas Pontikos is a Senior Research Fellow at UCL Institute of Ophthalmology, and has been working on inherited retinal conditions for several years.

• Case study - research
• Written

This page explains the different types of genetic tests: diagnostic testing, predictive testing, carrier testing and research testing

You may have heard that a cell-based treatment approach (sometimes referred to as a “stem cell treatment”), developed by a company called ReNeuron, is being tested in a clinical trial at Oxford Eye Hospital and other centres in the US and Europe.

• News
• Retinitis pigmentosa

Whether you are looking for practical information or emotional support, online, by phone or face-to-face, we’re here to help.

Thursday 7 November 2024, 7.00pm - 8.00pm - via Zoom - Join us for a tech round up following on from our visit to the London Sight Village event.

• Local peer support group

Have you ever been tempted to take part in the TCS London Marathon? In 2022 the TCS London Marathon raised £58.3 million for charity so it’s a vital source of income.

• Webinar
• Audio
• Video

Martin's son was diagnosed with Stargardt’s at a young age which has led Martin to take a close interest in the progress of research into Retinal disease.

• Trustee
• Written

Roger has retinitis pigmentosa, as do his son, mother and grandfather. He was officially diagnosed aged 16.

• Trustee
• Written