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A group of people seated around a table. A man in the foreground is wearing a Retina UK tshirt with his back to the camera

Join our Lived Experience Panel

Our sight loss survey highlighted that you have a real appetite to get involved in representing the inherited sight loss community through activities like focus groups, surveys and research projects via the Retina UK Lived Experience Panel.

A group of supporters taking on 5K A Day In May.

5K A Day In May 2026

May is National Walking Month! Are you ready to join #TeamRetinaUK in May for our daily 5K challenge? Your support will allow us to continue supporting those who are living with inherited sight loss.

Funding paves the way for achromatopsia

A research project funded by Retina UK helped pave the way to a new gene therapy that has recently produced encouraging results in two young people with achromatopsia, a condition that causes complete colour-blindness and poor overall vision from birth.