Bardet-Biedl syndrome (BBS)
Bardet-Biedl syndrome (BBS) is an inherited, rare condition which impacts many parts of the body including the retina.
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Bardet-Biedl syndrome (BBS) is an inherited, rare condition which impacts many parts of the body including the retina.
Thursday 19 September, 11.00am - 1.00pm - In-person - Come and join us at the Princess Alexandra Eye Pavilion for a special focus group with Dr. Roly Megaw.
Thursday 19 September, 11.00am - In-person - Please come and join us for a guided tour of the new 'Seeing Differently' exhibition at the MK Gallery.
Saturday 5 October, 10.00am - In-person - Come and join the Belfast Bumpers Group for a day out in Londonderry with lunch at The Exchange restaurant followed by a walk around The Derry Walls.
Saturday 12 October, 1.00pm - 7.00pm - *Rescheduled from 10 August* Come and join us for our second collaborative in-person event of 2024 with Northern Alliance VIP's when we return to The Bridge Hotel in Newcastle.
Whether you are looking for practical information or emotional support, online, by phone or face-to-face, we’re here to help.
Saturday 12 October, 10.30am - 3.30pm - In-person - Come and join the Hampshire group for a visit to the Tudor House and Garden in historic Southampton, followed by a pub lunch.
Saturday 28 September 2024, 5pm - In-person meet up for food and drinks at the Pendulum Hotel Garden Bar & Restaurant following on from our Annual Conference.
Saturday 5 October, 10.30am - 11.30am - In-person Wellbeing Event - Come and join us for a session of Puppy Yoga!