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Genetic testing and counselling services are usually coordinated through a main hospital where the eye clinic or clinical service is based; some also have clinics in local hospitals across the service’s area.

Come along to our Open Day at our headquarters and hear all about our upcoming 50th anniversary and our vital work.

• Fundraising Events
• United Kingdom

My name is Mark Baxter and from an early age I was diagnosed with a deteriorating retinal eye condition called retinitis pigmentosa or RP for short, which will slowly lead to blindness.

• Case study - community
• Written

Alex Pitts from British Blind Sport talks about the benefits of sport and physical activity and the BBS Have a Go Days and Active at Home programme.

• Webinar
• Audio
• Video

Join Colin & Linda McArthur for their annual Isle of Wight walk in support of Retina UK. Last year's event raised a record-breaking £6,000+!

• Walks & Treks
• Isle of Wight

Luxturna, a gene therapy, is only for the treatment of Leber congenital amaurosis type 2 (LCA2) and severe early-onset RP caused by mutations in a specific gene called RPE65.

• FAQ
• Written

In April 2022 we joined with another seven leading sight loss organisations to make a public commitment to increasing the number of blind and partially sighted people employed within our sector, including at senior management level.

• News

Kathy joined Retina UK as Chair of Trustees in September 2024.

• Trustee
• Written

These are some of the most commonly asked questions about genetic testing and counselling.

Dr Rachel Taylor is part of the UK Inherited Retinal Dystrophy Consortium (UKIRDC) team at the University of Manchester.

• Case study - research
• Written