Achromatopsia
Achromatopsia is a rare hereditary vision disorder affecting approximately 1 in 30,000 newborn babies.
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Gyrate atrophy of the choroid and retina
Gyrate atrophy of the choroid and retina, shortened to gyrate atrophy, is an inherited disorder of protein metabolism characterised by progressive vision loss.
5K A Day In May 2025
May is National Walking Month! Are you ready to join #TeamRetinaUK in May for our daily 5K challenge? Your support will allow us to continue supporting those who are living with inherited sight loss.
5K A Day In May 2024
May is National Walking Month! Are you ready to join #TeamRetinaUK in May for our brand new daily 5K challenge? Your support will allow us to continue supporting those who are living with inherited sight loss.
Run Locally
As well as many of the well known races, we also have places available in hundreds of local runs. Wherever you live, you can run as part of #TeamRetinaUK!
Research we fund
We are currently funding a range of exciting projects and programmes, all of which aim to enhance our understanding of inherited sight loss, and inform the development of treatments for the estimated two million people affected worldwide.
X-linked retinoschisis (XLRS)
X-linked retinoschisis (XLRS) is an inherited condition that causes early loss of mainly central vision in males.
TCS London Marathon MyWay 2025 (Virtual Event)
Do you want to take part in the world-famous TCS London Marathon, from the comfort of your own city? Take part virtually on race day and join #TeamRetinaUK in 2025!
Charles Bonnet syndrome
Charles Bonnet syndrome (CBS) causes people who have lost a lot of sight to see things that aren’t real (hallucinations).
Familial Exudative Vitreoretinopathy (FEVR)
Familial Exudative Vitreoretinopathy (FEVR) is an inherited disorder that causes progressive vision loss.