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Refsum syndrome is an inherited metabolic condition, associated with elevated phytanic acid plasma levels, which impacts many body systems.

Bardet-Biedl syndrome (BBS) is an inherited condition which impacts many parts of the body including the retina.

Achromatopsia is a rare hereditary vision disorder affecting approximately 1 in 30,000 newborn babies.

Pattern dystrophy is an umbrella term for a group of retinal conditions. It is characterized by various patterns of pigment deposition within the macula.

During our 50th anniversary year, double your donations to Retina UK for one week only - at no extra cost to you!

Gyrate atrophy of the choroid and retina, shortened to gyrate atrophy, is an inherited disorder of protein metabolism characterised by progressive vision loss.

During our 50th anniversary year, take to the skies with an epic spring skydive for Retina UK!

• Extreme Challenges
• United Kingdom

May is National Walking Month! Are you ready to join #TeamRetinaUK in May for our daily 5K challenge? Your support will allow us to continue supporting those who are living with inherited sight loss.

• Walks & Treks
• United Kingdom

Please get in touch with us using the method which suits you best. You'll find details of all of the different ways you can contact us on this page.

Do you want to take part in the world-famous TCS London Marathon, from the comfort of your own city? Take part virtually on race day and join #TeamRetinaUK in 2026!

• Running
• United Kingdom