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Research update – ProQR

In February 2022, ProQR announced a disappointing outcome for their phase 2/3 trial of sepofarsen for Leber congenital amaurosis type 10 (LCA10).

A photo of Ben Ramus and 2 friends on a hike. Mountains are behind them.

Ben Ramus: Our epic challenge for Retina UK

This July, Ben Ramus will lead a group of twelve adventurers as they take on the renowned National Three Peaks Challenge, in aid of national sight loss charity, Retina UK. Ben has decided to take on the epic challenge in recognition of two of his uncles’ sight loss journey, as they live with the rare inherited sight loss condition, retinitis pigmentosa.

An aerial view of the Clifton Suspension Bridge spanning the Avon Gorge in Bristol, UK

Great Bristol Run Half Marathon 2026

With a flat course and thousands of runners taking to the streets of Bristol, this highly popular event is set to be another sell-out in 2025 and you could be there, through one of Retina UK's charity places.

BBC Lifeline Appeal 2025

During our 50th anniversary year, Retina UK was the focus of a BBC Lifeline Appeal on Sunday 16 November 2025.

An aerial view of the city of Leicester, a historic city in the East Midlands of England

Leicester 10K 2026

With a city centre start and finish, #TeamRetinaUK runners will set off from Jubilee Square before heading into the city centre and into the beautiful greenery of Victoria Park, before an electric finish.

The Clifton Suspension Bridge spanning the Avon Gorge and River Avon in Bristol, England.

Great Bristol Run 10K 2026

If stunning views, inspiring history and graffiti murals are your thing, then this is the race for you in 2026. With a flat course and thousands of runners taking to the streets, it's a fantastic event to be a part of.

Albert Square in Manchester, UK, during the Manchester Christmas Markets

Great Manchester Run 10K 2026

Join #TeamRetinaUK in the centre of Manchester for a hugely popular race, back for another year in 2026. With a flat course and thousands of runners taking to the streets, it's set to be another fantastic event.

A runner is shown in a Retina UK runnning vest posing with a thumbs up

Hackney Half Marathon 2026

Run through London’s most creative and inspiring borough with vibrant street art and entertainment on course and celebrate your 13.1 mile achievement with thousands in Hackney, complete with music, food, drink and wellbeing activities.

Little boy looking at camera and smiling while sitting on chair at the ophthalmologist

Our manifesto

Retina UK are committed to improving the lives of people affected by inherited retinal dystrophies (IRDs).

Webinar: Mark Goes to Las Vegas

Join our upcoming webinar to hear about our Information and Support Coordinator, Mark Baxter's, holiday in Las Vegas.