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Steve has been volunteering for Retina UK since its formation in 1976 and has been a part of the Helpline team since the early 1980s.. He remembers very well a caller named Khadeja, who called the Helpline multiple times, following her diagnosis with RP in 1999.
Retina UK is a charity. Our Board of Trustees is responsible for the strategic management of the organisation and delivery of our charitable objectives.
The BBC World Service has undertaken an investigation of unproven treatments for retinitis pigmentosa (RP) and has produced a documentary film, called Blind Faith, which is available on BBC iPlayer.
Ashley has completed the London Marathon numerous times. He was part of #TeamRetinaUK in 2021 and talks here about his experience.
Russ was diagnosed with Choroideremia at the age of 11, after visiting caves in Spain and not being able to see anything.
Our West Yorkshire peer support group recently welcomed The Blind Poet, Dave Steele, who is living with retinitis pigmentosa, to their meeting. He talks candidly about his diagnosis, his poetry and his optimistic mindset.
Retina UK aims not only to progress research along established threads, but to stimulate new thinking, encourage innovative approaches and nurture original ideas.
Raise money to help support people affected by inherited sight loss to lead better lives today and accelerate the search for treatments for the future.
This scenic course takes you past the amazing sights of Cambridge and is ideal for those tackling their first 13.1 mile event and those looking for a PB. You’ll get plenty of support out on the course with multiple aid stations, pacers and big crowds.
Many inherited sight loss conditions occur when cells in the retina, which is the light-sensitive region at the back of the eye, deteriorate in an unpredictable way. These conditions are often referred to as inherited retinal dystrophies.
