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Ashley has completed the London Marathon numerous times. He was part of #TeamRetinaUK in 2021 and talks here about his experience.

• Case study - supporter
• Written

Be a souper-star and raise funds whilst having lunch for #TeamRetinaUK

Join us for an inspiring webinar where young adults living with sight loss share their extraordinary stories and insights.

• Webinar
• Audio
• Video

In February 2022, ProQR announced a disappointing outcome for their phase 2/3 trial of sepofarsen for Leber congenital amaurosis type 10 (LCA10).

• News
• Usher syndrome

Graeme's son is living with retinitis pigmentosa and he has decided to take on an extreme challenge - running 250km across the Sahara Desert, with 6 stages, varying in length from 21km to 82 km, over 7 days.

• Case study - community
• Written

Russ was diagnosed with Choroideremia at the age of 11, after visiting caves in Spain and not being able to see anything.

• Case study - community
• Written

The Great North Run is the largest half marathon in the world, taking place annually in Newcastle.

• Running
• Newcastle

Raise money to help support people affected by inherited sight loss to lead better lives today and accelerate the search for treatments for the future.

Experience the thrill of the Green Park Reading Half Marathon, one of the UK’s most celebrated half marathons since its launch in 1983 and support Retina UK in 2026.

• Running
• United Kingdom

Many inherited sight loss conditions occur when cells in the retina, which is the light-sensitive region at the back of the eye, deteriorate in an unpredictable way. These conditions are often referred to as inherited retinal dystrophies.