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Be a souper-star and raise funds whilst having lunch for #TeamRetinaUK

In February 2022, ProQR announced a disappointing outcome for their phase 2/3 trial of sepofarsen for Leber congenital amaurosis type 10 (LCA10).

• News
• Usher syndrome

Graeme's son is living with retinitis pigmentosa and he has decided to take on an extreme challenge - running 250km across the Sahara Desert, with 6 stages, varying in length from 21km to 82 km, over 7 days.

• Case study - community
• Written

Russ was diagnosed with Choroideremia at the age of 11, after visiting caves in Spain and not being able to see anything.

• Case study - community
• Written

Raise money to help support people affected by inherited sight loss to lead better lives today and accelerate the search for treatments for the future.

Experience the thrill of the Green Park Reading Half Marathon, one of the UK’s most celebrated half marathons since its launch in 1983 and support Retina UK in 2026.

• Running
• United Kingdom

With a carnival atmosphere and the passion and spirit of the runners. this is a race like no other. Expect inspiring sights, iconic landmarks and incredible support all along the route. Join #TeamRetinaUK and experience it yourself!

• Running
• Birmingham

Many inherited sight loss conditions occur when cells in the retina, which is the light-sensitive region at the back of the eye, deteriorate in an unpredictable way. These conditions are often referred to as inherited retinal dystrophies.

Join #TeamRetinaUK for an unforgettable Kiltwalk adventure in Glasgow, Aberdeen, Dundee or Edinburgh, throughout 2026.

• Walks & Treks
• Scotland

Run the Leicestershire Half Marathon and make every mile matter for people living with inherited sight loss. A great course, a great challenge, and a great way to support Retina UK in 2026.

• Running
• United Kingdom