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Steve has been volunteering for Retina UK since its formation in 1976 and has been a part of the Helpline team since the early 1980s.. He remembers very well a caller named Khadeja, who called the Helpline multiple times, following her diagnosis with RP in 1999.
X-linked inheritance means that the faulty gene is located on the X chromosome, the larger of the two sex chromosomes.
Information for healthcare professionals: Genetic testing and counselling in inherited retinal disease
Join us for our upcoming webinar!
Be a souper-star and raise funds whilst having lunch for #TeamRetinaUK
Graeme's son is living with retinitis pigmentosa and he has decided to take on an extreme challenge - running 250km across the Sahara Desert, with 6 stages, varying in length from 21km to 82 km, over 7 days.
Raise money to help support people affected by inherited sight loss to lead better lives today and accelerate the search for treatments for the future.
Run the Leicestershire Half Marathon and make every mile matter for people living with inherited sight loss. A great course, a great challenge, and a great way to support Retina UK in 2026.
This scenic course takes you past the amazing sights of Cambridge and is ideal for those tackling their first 13.1 mile event and those looking for a PB. You’ll get plenty of support out on the course with multiple aid stations, pacers and big crowds.
The Great North Run is the largest half marathon in the world, taking place annually in Newcastle and you could be there with #TeamRetinaUK!
