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Our community are the reason we are able to continue supporting those with inherited sight-loss conditions through research and practical support.

X-linked inheritance means that the faulty gene is located on the X chromosome, the larger of the two sex chromosomes.

Information for healthcare professionals: Genetic testing and counselling in inherited retinal disease

Join us for our upcoming webinar!

• Webinar

Mark your special day, whilst fundraising for people with inherited sight loss.

We are proud to announce that Amar Latif - adventurer, entrepreneur, TV presenter and public speaker - is to join Retina UK as a volunteer ambassador.

• News

Steve has been volunteering for Retina UK since its formation in 1976 and has been a part of the Helpline team since the early 1980s.. He remembers very well a caller named Khadeja, who called the Helpline multiple times, following her diagnosis with RP in 1999.

• Case study - community
• Written

Find out more about Martyn Osborne's big win on the Retina UK Lottery and why he would recommend playing.

• News