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The following questions are often asked by people contacting Retina UK.

Mark your special day, whilst fundraising for people with inherited sight loss.

During RP awareness month, Paul Bacon has shared how his diagnosis has impacted his life and shared messages about how non visually impaired people can support those living with inherited sight loss. To learn more about inherited sight loss please take the time to read Paul's story.

• Story
• Retinitis pigmentosa

It’s time to reflect, celebrate and look to the future... and you’re invited. Join us for an unforgettable evening as we celebrate the culmination of our 50th anniversary year.

• Fundraising Events
• London

We are proud to announce that Amar Latif - adventurer, entrepreneur, TV presenter and public speaker - is to join Retina UK as a volunteer ambassador.

• News

Find out more about Martyn Osborne's big win on the Retina UK Lottery and why he would recommend playing.

• News

Steve has been volunteering for Retina UK since its formation in 1976 and has been a part of the Helpline team since the early 1980s.. He remembers very well a caller named Khadeja, who called the Helpline multiple times, following her diagnosis with RP in 1999.

• Case study - community
• Written

X-linked inheritance means that the faulty gene is located on the X chromosome, the larger of the two sex chromosomes.

Information for healthcare professionals: Genetic testing and counselling in inherited retinal disease