Charles Bonnet syndrome (CBS)
Charles Bonnet syndrome (CBS) causes people who have lost a lot of sight to see things that aren’t real (hallucinations).
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Familial Exudative Vitreoretinopathy (FEVR)
Familial Exudative Vitreoretinopathy (FEVR) is an inherited disorder that causes progressive vision loss.
Spring Skydive 2026
During our 50th anniversary year, take to the skies with an epic spring skydive for Retina UK!
5K A Day In May 2026
May is National Walking Month! Are you ready to join #TeamRetinaUK in May for our daily 5K challenge? Your support will allow us to continue supporting those who are living with inherited sight loss.
X-linked retinoschisis (XLRS)
X-linked retinoschisis (XLRS) is an inherited condition that causes early loss of mainly central vision in males.
Central areolar choroidal dystrophy (CACD)
Central Areolar Choroidal Dystrophy (CACD) is a rare inherited condition that affects the macula, the small area in the middle of the retina that is primarily responsible for our central vision.
Doyne honeycomb dystrophy
Doyne honeycomb dystrophy is an inherited disorder which causes progressive sight loss.
Rare syndromes
These very rare syndromes (NARP, Bassen-Kornweig, PXE, Norrie) affect the eyes as well as other parts of the body.
Victoria Park Half Marathon 2026 (February)
Is 2026 the year that you join #TeamRetinaUK & take on the Victoria Park Half Marathon?
Women’s Run Series 5K 2026 (March)
Is 2026 the year that you join #TeamRetinaUK and take on the Women's Run Series 5K in London?