Familial Exudative Vitreoretinopathy (FEVR)
Familial Exudative Vitreoretinopathy (FEVR) is an inherited disorder that causes progressive vision loss.
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TCS London Marathon MyWay 2025 (Virtual Event)
Do you want to take part in the world-famous TCS London Marathon, from the comfort of your own city? Take part virtually on race day and join #TeamRetinaUK in 2025!
Central areolar choroidal dystrophy (CACD)
Central Areolar Choroidal Dystrophy (CACD) is a rare inherited condition that affects the macula, the small area in the middle of the retina that is primarily responsible for our central vision.
X-linked retinoschisis (XLRS)
X-linked retinoschisis (XLRS) is an inherited condition that causes early loss of mainly central vision in males.
5K A Day In May 2025
May is National Walking Month! Are you ready to join #TeamRetinaUK in May for our daily 5K challenge? Your support will allow us to continue supporting those who are living with inherited sight loss.
Doyne honeycomb dystrophy
Doyne honeycomb dystrophy is an inherited disorder which causes progressive sight loss.
Rare syndromes
These very rare syndromes (NARP, Bassen-Kornweig, PXE, Norrie) affect the eyes as well as other parts of the body.
RideLondon 2025
RideLondon has been postponed for 2025, but if you would like to find out more information about future events, please get in touch to join our waiting list.
Easter 50 Ultra Challenge 2024
Is 2024 the year that you join #TeamRetinaUK & take on the Easter 50 Ultra Challenge?
Take on a challenge
With your challenge, you’ll help support people affected by inherited sight loss to lead better lives today and accelerate the search for treatments for the future.