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Our community is informed and knowledgeable about current research projects into the cause(s) of and treatments for these conditions.

In April 2022 we joined with another seven leading sight loss organisations to make a public commitment to increasing the number of blind and partially sighted people employed within our sector, including at senior management level.

• News

High quality information on genetic testing and counselling for families affected by inherited sight loss is now available in one place thanks to the launch of an innovative new website, Unlock Genetics.

• News

Join our upcoming webinar to hear about our Information and Support Coordinator, Mark Baxter's, holiday in Las Vegas.

• Webinar
• Online

Russ was diagnosed with Choroideremia at the age of 11, after visiting caves in Spain and not being able to see anything.

• Case study - community
• Written

This stunning central London half marathon, takes in some of the capital’s world-famous landmarks on closed roads.

• Running
• London

The Spring 2023 edition of the Retina UK newsletter, Look Forward, which includes articles about our upcoming events, research updates and more.

• Look Forward
• Audio
• Written

Our sight loss survey highlighted that you have a real appetite to get involved in representing the inherited sight loss community through activities like focus groups, surveys and research projects via the Retina UK Lived Experience Panel.

Listen to our webinar to hear about our Information and Support Coordinator, Mark Baxter's, holiday in Las Vegas.

• Webinar
• Audio
• Video

We have created Discover Wellbeing to help people affected by inherited sight loss to develop an awareness of emotional wellbeing and the practical skills to adapt to life’s ups and downs.