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Could you take on an adventure of a lifetime for Retina UK and take part in the Sahara Desert Trek in November 2025?

• Walks and treks
• United Kingdom

These very rare syndromes (NARP, Bassen-Kornweig, PXE, Norrie) affect the eyes as well as other parts of the body.

Could you take part in RideLondon 2025 for #TeamRetinaUK?

• Cycle
• London

Please get in touch with us using the method which suits you best. You'll find details of all of the different ways you can contact us on this page.

Many research studies could not take place without the participation of people living with inherited sight loss.

Is 2024 the year that you join #TeamRetinaUK & take on the Thames Moonlight 10?

• Walks and treks
• United Kingdom

Rod-cone dystrophy is an umbrella term used to describe retinal conditions in which the rod-shaped photoreceptors, found mainly in the peripheral areas of the retina, degenerate ahead of the cone-shaped photoreceptors in the centre.

In this condition, retinitis pigmentosa is accompanied by progressive neurological problems, abnormal red blood cells (acanthocytosis) and defective bowel absorption of fat, leading to very low blood levels of cholesterol and absent beta lipoprotein (Abetalipoproteinaemia).

With entertainment and iconic landmarks on course, this is a sporting moment you’ll remember forever.

• Run
• London

This fantastic course showcases the historic Broadway Market and vibrant street art of East London. With live bands and entertainment throughout the course, join #TeamRetinaUK for the 2024 event!

• Run
• United Kingdom