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Please get in touch with us using the method which suits you best. You'll find details of all of the different ways you can contact us on this page.

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Join our Lived Experience Panel

Our sight loss survey highlighted that you have a real appetite to get involved in representing the inherited sight loss community through activities like focus groups, surveys and research projects via the Retina UK Lived Experience Panel.

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Please read our conditions of use carefully as by using the website you will be assumed to have agreed to be bound by them.

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Trusts and Foundations

Inherited retinal dystrophies (IRDs) are the leading cause of blindness in working-age people in the UK, and children as young as eighteen-months are regularly diagnosed.