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Inherited progressive sight loss is caused by a range of rare genetic conditions. We specialise in those which affect the retina.

These are some of the most commonly asked questions about volunteering for our charity.

Our sight loss survey highlighted that you have a real appetite to get involved in representing the inherited sight loss community through activities like focus groups, surveys and research projects via the Retina UK Lived Experience Panel.

UK researchers have discovered that passing a weak electrical current between electrodes on a person’s scalp may lead to a reduction in frequency of the visual hallucinations experienced by some people living with sight loss.

• News
• Charles Bonnet Syndrome

Electrical stimulation is under investigation to determine whether a small electric charge applied to the retina can stimulate the production of a number of important biological ‘factors’ that in turn could trigger light-sensitive cells (photoreceptors) to regenerate.

Growth factors are substances that promote the health and function of cells and tissues in the body.

A recording of the 45th Retina UK Annual Conference on 9 July 2022. The Conference was held at the Macdonald Burlington Hotel in Birmingham and also online.

• Conference
• Audio
• Video

A general overview of the clinical trials process and practicalities, including issues to consider if you are given the opportunity to take part.

• Webinar
• Video

Alex Pitts from British Blind Sport talks about the benefits of sport and physical activity and the BBS Have a Go Days and Active at Home programme.

• Webinar
• Audio
• Video

Dr Daniel Jackson discusses what images you are likely to have during a hospital appointment; how they are taken; why we take them; how we interpret them; and how this helps in the management and treatment of retinal conditions

• Webinar
• Audio
• Video