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Could you take on a thrilling skydive for Retina UK this summer? Join us at various airfields around the UK this July.

• Extreme Challenges
• Various

Are you looking for a thrill with a view? Could you take on a skydive for Retina UK this summer? Join us at various airfields around the UK this July.

• Extreme Challenges
• Various

The content on this site will have answered some of your queries about inherited sight loss and associated syndromes, but everyone’s circumstances are different and you may have further questions.

Gyrate atrophy of the choroid and retina, shortened to gyrate atrophy, is an inherited disorder of protein metabolism characterised by progressive vision loss.

Charles Bonnet syndrome (CBS) causes people who have lost a lot of sight to see things that aren’t real (hallucinations).

RideLondon has been postponed for 2025, but if you would like to find out more information about future events, please get in touch to join our waiting list.

• Cycling
• London

The Retina UK Annual Conference will be held on Saturday 20 September. You can join the Conference in-person or online.

• Conferences
• Online

Could you take on an adventure of a lifetime for Retina UK and take part in the Sahara Desert Trek in November 2026?

• Walks & Treks
• United Kingdom

Could you take on an adventure of a lifetime for Retina UK and take part in the Great Wall of China Trek in November 2026?

• Walks & Treks
• United Kingdom

These very rare syndromes (NARP, Bassen-Kornweig, PXE, Norrie) affect the eyes as well as other parts of the body.