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These frequently asked questions should provide a response for most of the queries you might raise.

Luxturna, a gene therapy, is only for the treatment of Leber congenital amaurosis type 2 (LCA2) and severe early-onset RP caused by mutations in a specific gene called RPE65.

• FAQ
• Written

Our monthly e-Newsletter featuring the latest updates from Retina UK.

• e-Newsletter
• Audio
• Written

Our monthly e-Newsletter featuring the latest updates from Retina UK.

• e-Newsletter
• Audio
• Written

The following questions are often asked by people contacting Retina UK.

Graeme's son is living with retinitis pigmentosa and he has decided to take on an extreme challenge - running 250km across the Sahara Desert, with 6 stages, varying in length from 21km to 82 km, over 7 days.

• Case study - community
• Written

Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.

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The Great North Run is the largest half marathon in the world, taking place annually in Newcastle.

• Running
• Newcastle

With live music and thousands of spectators, this hugely popular race sells out fast but you could be there as part of #TeamRetinaUK in 2025. In true Mancunian style, it’s a party from start to finish, with a high-energy soundtrack along the route!

• Running
• Manchester

Join #TeamRetinaUK for an unforgettable Kiltwalk adventure in Glasgow, Aberdeen, Dundee or Edinburgh, throughout 2026.

• Walks & Treks
• Scotland