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Making yourself aware of the what you are entitled to, and understanding the diagnosis pathway for inherited sight loss, will put you in a stronger position to seek better support.

Skydiving is an exhilarating experience, and you can do this while supporting our cause. Various dates and locations are available across the UK.

• Extreme Challenges
• Various

RideLondon 100 is back! Take on 100 miles with Retina UK.

• Cycling
• London

Join us for an inspiring webinar where young adults living with sight loss share their extraordinary stories and insights

• Webinar

Our monthly e-Newsletter featuring the latest updates from Retina UK.

• e-Newsletter
• Audio
• Written

We talk to BBC reporter Ramadan Younes and Professor Robert Maclaren following the BBC documentary Blind Faith

• Podcast
• Audio

Our amazing volunteers are diverse in age, background and ethnicity. The one thing they have in common is that they are all living with, or directly affected by, an inherited sight loss condition.

• Case study - community
• Written

Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.

• e-Newsletter
• Audio
• Written

Your doctor or genetic counsellor will spend some time asking about other people in your family to try to work out the way in which your particular faulty gene has been passed down through the generations – this is referred to as the inheritance pattern.

A huge thank you to everyone who completed our 2025 sight loss survey. This year we received over 600 responses. It follows similar surveys in 2019 and 2022 which led directly to the introduction of our Unlock Genetics and Discover Wellbeing resources, as well as shaping our work with the professional community who support people with inherited sight loss.

• News