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Our sight loss survey highlighted that you have a real appetite to get involved in representing the inherited sight loss community through activities like focus groups, surveys and research projects via the Retina UK Lived Experience Panel.
A recording of the Retina UK Professionals' Conference on 19 September 2025. The Conference was held at the Holiday Inn, Regent's Park, London and online.
A recording of the Retina UK Annual Conference on 20 September 2025. The Conference was held at the Holiday Inn, Regent's Park, London and online.
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Inherited retinal dystrophies (IRDs) are the leading cause of blindness in working-age people in the UK, and children as young as eighteen-months are regularly diagnosed.
Whether you are looking for practical information or emotional support, online, by phone or face-to-face, we’re here to help.
We’re all still buzzing from our recent conferences. We do hope you enjoyed them as much as we did. If you weren’t able to join us, then you can watch or listen to the recordings on our website.
Retina UK has a number of online support resources which we offer via social media.
If you, or a close relative, are living with a genetic sight loss condition, there may be a chance that your children will inherit it.
