Meet our community: Russ Stephenson
Russ was diagnosed with Choroideremia at the age of 11, after visiting caves in Spain and not being able to see anything.
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e-Newsletter – January 2023
Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.
Frequently asked questions
These are some of the most commonly asked questions about genetic testing and counselling.
Why genes matter
Genes exist inside all the cells that make up your body. They contain genetic code (DNA) and provide instructions for constructing proteins, which are the building blocks of our bodies and perform a huge variety of roles.
Virtual TCS London Marathon
Back for 2023, the virtual TCS London Marathon lets you join our team close to home and get your marathon medal!
Ride for Retina UK
Clock up 100 miles on your bike with this virtual challenge.
Hampshire Local Peer Support Group
Saturday 15 November 2025, 12.30pm - 3.30pm - In-person - Come and join the Hampshire group for a festive in-person get together and lunch at the Jolly Farmer Pub & Restaurant in Winchester.
Leaflet: Introduction to the charity and a guide to services
Are you affected by inherited sight loss? We are here to help. Retina UK is a national charity. We offer information and support to people affected by inherited sight loss to enable them to lead better lives today and fund medical research to accelerate the search for treatments for the future.
Men’s Peer Support Group
Tuesday 16 December 2025, 7.00pm - 8.30pm - via Zoom - Come and join us for a festive Men's Peer Support Group online social catch up and our last meeting of the year.
West Midlands Local Peer Support Group
Saturday 6 December 2025, 2.00pm - 4.00pm - In-person - Please come and join Perm and the group for a festive social catch up over a Bottomless Brunch at The Railway pub in Birmingham City Centre.