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These are some of the most commonly asked questions about genetic testing and counselling.

Genes exist inside all the cells that make up your body. They contain genetic code (DNA) and provide instructions for constructing proteins, which are the building blocks of our bodies and perform a huge variety of roles.

Back for 2023, the virtual TCS London Marathon lets you join our team close to home and get your marathon medal!

• Running
• Close to home

Clock up 100 miles on your bike with this virtual challenge.

• Cycling
• Close to home

Are you affected by inherited sight loss? We are here to help. Retina UK is a national charity. We offer information and support to people affected by inherited sight loss to enable them to lead better lives today and fund medical research to accelerate the search for treatments for the future.

• Leaflet
• Audio
• Written

Saturday 13 September 2025, 11.00am - 1.00pm - In-person - Come and join Valerie and the group when we return to the Festival Theatre in Edinburgh to hear from guest speakers Graham Gunning & Fraser Fleming from TripleTapTech.

• Local Peer Support Group

Wednesday 27 August 2025, 7.00pm - 8.30pm - via Zoom - Come and join us for our latest Men's Peer Support Group online social catch up.

• Local Peer Support Group

Monday 13 October 2025, 7.00pm - 8.00pm - via Zoom - Come and join James and the group for their latest online social catch up.

• Local Peer Support Group

Saturday 25 October 2025, 12.00pm - 5.00pm - In-person - Come and join Rachael and the group for their latest in-person meeting at The Waldorf pub, with guest speaker Nina Rios, Community Enablement Officer from the Sight Loss Support Team at Henshaws.

• Local Peer Support Group

Cataracts occur fairly frequently and at a relatively early age within the Retina UK community of people with inherited retinal conditions. A question that comes up over and over again is whether or not to have cataract surgery.

• Podcast
• Audio