Frequently asked questions
These are some of the most commonly asked questions about genetic testing and counselling.
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Why genes matter
Genes exist inside all the cells that make up your body. They contain genetic code (DNA) and provide instructions for constructing proteins, which are the building blocks of our bodies and perform a huge variety of roles.
Virtual TCS London Marathon
Back for 2023, the virtual TCS London Marathon lets you join our team close to home and get your marathon medal!
Ride for Retina UK
Clock up 100 miles on your bike with this virtual challenge.
Leaflet: Introduction to the charity and a guide to services
Are you affected by inherited sight loss? We are here to help. Retina UK is a national charity. We offer information and support to people affected by inherited sight loss to enable them to lead better lives today and fund medical research to accelerate the search for treatments for the future.
West Midlands Local Peer Support Group
Saturday 19 July, 2.00pm - 4.00pm - In-person - Please come and join Perm and the group for their latest social catch up over lunch at The Railway pub in Birmingham City Centre.
Podcast: Cataract surgery for people living with inherited sight loss
Cataracts occur fairly frequently and at a relatively early age within the Retina UK community of people with inherited retinal conditions. A question that comes up over and over again is whether or not to have cataract surgery.
Grant from The National Lottery Community Fund
We regularly make applications for grants to fund our information and support projects and have recently been successful in securing £12,000 from The National Lottery Community Fund.
Gene therapy treatment Luxturna accepted for use in Scotland
Retina UK is delighted that the Scottish Medicines Consortium (SMC) has accepted the gene therapy Luxturna (voretigene neparvovec) for ongoing use by the NHS in Scotland.
Leaflet: Are you supporting someone with inherited sight loss
A guide for professionals. Retina UK is a national charity. We offer information and support to people affected by inherited sight loss to enable them to lead better lives today and fund medical research to accelerate the search for treatments for the future. We also support professionals working with them.