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Bhavini was diagnosed with RP in 1997 aged 17. The consultant who confirmed her diagnosis told her that “there was no cure or treatment and she should prepare to go blind".

• Case study - community
• Written

Russ was diagnosed with Choroideremia at the age of 11, after visiting caves in Spain and not being able to see anything.

• Case study - community
• Written

We have created Discover Wellbeing to help people affected by inherited sight loss to develop an awareness of emotional wellbeing and the practical skills to adapt to life’s ups and downs.

Saturday 29 March, 1.00pm - 3.00pm - In-person - Come and join us at our new venue, the Festival Theatre in Edinburgh, for a social catch up and to hear from Jim McLean.

• Local Peer Support Group

In 2014 we funded an exciting new collaborative project. The UK Inherited Retinal Dystrophy Consortium (UKIRDC) Project brought together the four largest research groups in the UK specialising in inherited retinal diseases (IRDs).

Prof Dominic Ffytche will provide an explanation of what Charles Bonnet Syndrome is, the science behind it, and share some potential coping strategies for people who experience visual hallucinations.

• Webinar
• Video

Back for 2023, the virtual TCS London Marathon lets you join our team close to home and get your marathon medal!

• Running
• Close to home

Clock up 100 miles on your bike with this virtual challenge.

• Cycling
• Close to home

These are some of the most commonly asked questions about genetic testing and counselling.

The iconic National Three Peaks Challenge involves climbing the three highest peaks of Scotland, England and Wales within 24 hours.

• Walks & Treks
• United Kingdom