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Russ was diagnosed with Choroideremia at the age of 11, after visiting caves in Spain and not being able to see anything.

• Case study - community
• Written

Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.

• e-Newsletter
• Audio
• Written

These are some of the most commonly asked questions about genetic testing and counselling.

Genes exist inside all the cells that make up your body. They contain genetic code (DNA) and provide instructions for constructing proteins, which are the building blocks of our bodies and perform a huge variety of roles.

Clock up 100 miles on your bike with this virtual challenge.

• Cycling
• Close to home

Are you affected by inherited sight loss? We are here to help. Retina UK is a national charity. We offer information and support to people affected by inherited sight loss to enable them to lead better lives today and fund medical research to accelerate the search for treatments for the future.

• Leaflet
• Audio
• Written

Saturday 11 April 2026, 11.00am - 1.00pm - In-person - Come and join Valerie and the group for our first meeting of 2026 when we return to the Festival Theatre, Edinburgh to hear from guest speaker Chloe Brotherton, PhD Student working with Dr Roly Megaw.

• Local Peer Support Group

Tuesday 17 March 2026, 3.00pm - 5.00pm - In-person - Following on from the Glasgow Sight Village event please come and join our new Glasgow Peer Support Group facilitator Sarah Speed at Costa Coffee for a social catch up.

• Local Peer Support Group

Thursday 26 February 2026, 7.00pm - 8.30pm - via Zoom - Come and join Mark Baxter and the group for our latest Men's Peer Support Group online social catch up.

• Local Peer Support Group

Tuesday 24 February 2026, 7.00pm - 8.00pm - Via Zoom - Please come and join Perm and the group for their first online social catch up of the year.

• Local Peer Support Group