Search

Familial Exudative Vitreoretinopathy (FEVR) is an inherited disorder that causes progressive vision loss.

Central Areolar Choroidal Dystrophy (CACD) is a rare inherited condition that affects the macula, the small area in the middle of the retina that is primarily responsible for our central vision.

We carried out our first Sight Loss Survey in 2019 and used what we learned to improve our support. It was repeated in 2022. These are the findings.

• Audio
• Written

Many research studies could not take place without the participation of people living with inherited sight loss.

Is 2024 the year that you join #TeamRetinaUK & take on the National Three Peaks Challenge?

• Walks & Treks
• United Kingdom

May is National Walking Month! Are you ready to join #TeamRetinaUK in May for our daily 5K challenge? Your support will allow us to continue supporting those who are living with inherited sight loss.

• Walks & Treks
• United Kingdom

Take on the Brighton Marathon with a seaside finish!

• Running
• Brighton

Is 2024 the year that you join #TeamRetinaUK & take on the Great South Run?

• Running
• United Kingdom

With entertainment and iconic landmarks on course, this is a sporting moment you’ll remember forever.

• Running
• London

Superheroes, the race is on and it doesn’t get any bigger than this! As part of #TeamRetinaUK, join forces with hundreds of fellow superheroes at Dorney Lake!

• Assault Courses
• United Kingdom