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A genetic diagnosis for RP can give rise to unexpected surprises
James Birtley is a Retina UK supporter and volunteer who is living with retinitis pigmentosa. He is also a scientist with a particular interest in the structure of proteins, the complex molecules that form the building blocks of our bodies.

Information and support services
Whether you are looking for practical information or emotional support, online, by phone or face-to-face, we’re here to help.

‘Talking’ Travel Peer Support Group
Tuesday 28 October 2025, 7.00pm - 8.00pm - via Zoom - Come and join Richard & Rachael for our latest meeting to hear from our guest speaker Liam Geschwindt, Cofounder & CEO of Touch Pulse who will talk about their new outside navigational app Navis.
#TopTechTuesday
The latest developments in technology.

Meet our Trustee: Ashley Grist, Treasurer
Ashley is currently the Vice President & Chief Financial Officer, International for Vertex Pharmaceuticals.
Financial support for young people attending conference
Financial support for young people attending conference

Trusts and Foundations
Inherited retinal dystrophies (IRDs) are the leading cause of blindness in working-age people in the UK, and children as young as eighteen-months are regularly diagnosed.

Look Forward – Summer 2025 – Issue 186
This edition marks the start of the charity's 50th anniversary year. It includes lots of ways to get involved over the next 12 months along with details of our Annual and Professionals' Conferences in September.