Our affiliations
We are proud to work with a number of organisations that share our aims and values.
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We are proud to work with a number of organisations that share our aims and values.
Tuesday 27 October, 7.00pm - 8.00pm - via Zoom - Please come and join facilitator Perm and the group for their latest online catch up where we are delighted to welcome our inspirational guest speaker Shazia Begum.
Saturday 22 August 2026, 1.00pm - 7.00pm - In-person - Come and join Colin and the group at the Tyneside Irish Centre for their latest in-person event in Newcastle.
Monday 12 October 2026, 7pm - 8pm - via Zoom - Please come and join facilitator James and the Berkshire group for their latest online social catch up.
Saturday 8 August 2026, 12.30pm - 6.30pm - In-person - Please come and join Rachael and the group at The Waldorf pub in Manchester for their latest social get together including guest speakers Katy Whitwell & Lisa Howell from the RNIB's ECLO service.
Whether you are a professional looking for practical information for yourself, or practical or emotional support for your clients, online, by phone or face-to-face, we're here to help. All of our services are free to access and offered in a range of accessible formats.
Tuesday 22 September 2026, 7.00pm - 8.00pm - via Zoom - Please come and join facilitator Suzanne and the group for their latest online catch up where we are pleased to welcome our guest speaker Tricia Sail, winner of BBC's Race Across the World 2023.
Astena Theraputics' investigational gene therapy, ATSN-101, has shown promising long-term results in an early clinical trial for LCA1, a sever inherited retinal disease caused by mutations in the GUCY2D gene.
KIO-301, an experimental ‘photoswitch’ drug in development by Kiora Pharmaceuticals has shown encouraging safety results in early-stage testing and is now being evaluated in a phase 2 study known as ABACUS-2. It is currently being trialled in those with advanced RP, with the potential to expand into choroideremia and stargardt disease.