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A huge thank you to everyone who completed our 2025 sight loss survey. This year we received over 600 responses. It follows similar surveys in 2019 and 2022 which led directly to the introduction of our Unlock Genetics and Discover Wellbeing resources, as well as shaping our work with the professional community who support people with inherited sight loss.
Retina UK are committed to improving the lives of people affected by inherited retinal dystrophies (IRDs).
Our monthly e-Newsletter featuring the latest updates from Retina UK.
Retina UK is a charity supporting people affected by inherited sight loss and investing in medical research to help make their challenges a thing of the past.
We have created Discover Wellbeing to help people affected by inherited sight loss to develop an awareness of emotional wellbeing and the practical skills to adapt to life’s ups and downs.
Fancy fundraising for Retina UK? Here’s a few pointers to help get you started.
Jing Yu is a Research Assistant at the Nuffield Department of Clinical Neurosciences at the John Radcliffe Hospital in Oxford.
Russ was diagnosed with Choroideremia at the age of 11, after visiting caves in Spain and not being able to see anything.
We’re all still buzzing from our recent conferences. We do hope you enjoyed them as much as we did. If you weren’t able to join us, then you can watch or listen to the recordings on our website.
Different inherited sight loss conditions present noticeable symptoms at different times.
