Parents & Carers Peer Support Group
Thursday 28 November, 7.00pm - 8.30pm - via Zoom - Are you a parent or carer of a child living with an inherited retinal dystrophy? If so, we invite you to our first Parent & Carer Peer Support Group meeting.
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Meet our Ambassador: Steve Bate MBE
Steve is a Paralympian who was diagnosed with retinitis pigmentosa (RP) in 2011.
Retinal transplantation studies
Several groups around the world are investigating the use of retinal transplantation in the treatment of inherited retinal diseases.
Joint statement on benefits and employment support
As a coalition of sight loss charities, we are calling on the Government to make the benefit system and employment support fit for purpose for blind and partially sighted people.
Significantly worse vision found in female carriers of X-linked RP and Choroideremia
It was previously believed that female carriers of X-linked inherited retinal diseases (IRDs) like X-linked retinitis pigmentosa (RP and Choroideremia) remained unaffected by sight loss.
A fond farewell and a warm welcome
After more than 10 years of service as Chair of the Board of Trustees, Don Grocott has retired.
Lottery
Do you want to win up to £25,000 and feel good about supporting people with inherited progressive sight loss?!
Look Forward – Winter 2022 – Issue 178
The cover of this edition celebrates the success of our amazing London Marathon team. Together they have raised more than £43,000.
Look Forward – Spring 2024 – Issue 182
Inside this edition, set yourself a challenge in 2024, plus find out about our brand new lottery.
New Young Persons Project from Retina UK
We are proud to launch our new Young Persons Project, which will play a significant role in providing impactful and timely support for young people with inherited sight loss and mental health challenges, across the UK.