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You can download the last three years’ Trustees’ Annual Report & Accounts. They are also available on the Charity Commission website.

• Annual Report
• Written

Achromatopsia is a rare hereditary vision disorder affecting approximately 1 in 30,000 newborn babies.

Since we were founded in 1976, we have invested more than £18 million into some of the most pioneering medical research - because of amazing supporters like you.

The content on this site will have answered some of your queries about inherited sight loss and associated syndromes, but everyone’s circumstances are different and you may have further questions.

Leber Congenital Amaurosis (LCA) is a rare genetic eye disease that appears at birth or in the first few months of life.

Please get in touch with us using the method which suits you best. You'll find details of all of the different ways you can contact us on this page.

Refsum syndrome is an inherited metabolic condition, associated with elevated phytanic acid plasma levels, which impacts many body systems.

Welcome to the winter edition of Look Forward. It’s packed full of news from our Conferences, the latest research news and an interview with Hassina Zeriri, one of our funded PhD students.

We have also included details of lots of ways you can get involved with Retina UK over the coming months, along with some suggested festive fundraising for the Christmas period.

• Look Forward
• Audio
• Written

Choroideremia is a genetic condition that causes progressive vision loss, mostly in males.

Retinitis pigmentosa (RP) is an inherited eye condition that affects the photoreceptor cells responsible for capturing images from the visual field.