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Usher syndrome is an inherited condition that affects both hearing and vision.

Welcome to the winter edition of Look Forward. It’s packed full of news from our Conferences, the latest research news and an interview with Hassina Zeriri, one of our funded PhD students.

We have also included details of lots of ways you can get involved with Retina UK over the coming months, along with some suggested festive fundraising for the Christmas period.

• Look Forward
• Audio
• Written

Could you take on a thrilling skydive for Retina UK this summer? Join us at various airfields around the UK this July.

• Extreme Challenges
• Various

Could you take on an adventure of a lifetime for Retina UK and take part in the Sahara Desert Trek in November 2025?

• Walks & Treks
• United Kingdom

Stargardt disease is the most common form of juvenile macular dystrophy (or inherited degeneration).

Bardet-Biedl syndrome (BBS) is an inherited condition which impacts many parts of the body including the retina.

Achromatopsia is a rare hereditary vision disorder affecting approximately 1 in 30,000 newborn babies.

Leber Congenital Amaurosis (LCA) is a rare genetic eye disease that appears at birth or in the first few months of life.

Pattern dystrophy is an umbrella term for a group of retinal conditions. It is characterized by various patterns of pigment deposition within the macula.

Could you take on an adventure of a lifetime for Retina UK and take part in the Sahara Desert Trek in November 2026?

• Walks & Treks
• United Kingdom