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Please get in touch with us using the method which suits you best. You'll find details of all of the different ways you can contact us on this page.

Bardet-Biedl syndrome (BBS) is an inherited condition which impacts many parts of the body including the retina.

The Retina UK Annual Conference will be held in September. You can join the Conference in-person or online. Free to attend.

• Conferences
• Online

Our sight loss survey highlighted that you have a real appetite to get involved in representing the inherited sight loss community through activities like focus groups, surveys and research projects via the Retina UK Lived Experience Panel.

May is National Walking Month! Are you ready to join #TeamRetinaUK in May for our daily 5K challenge? Your support will allow us to continue supporting those who are living with inherited sight loss.

• Walks & Treks
• United Kingdom

Come together for Retina UK Day on Thursday, 8 October 2026 and help us raise awareness and funds for those who are living with inherited sight loss.

• Fundraising Events
• United Kingdom

Our new Retina UK online auction is now live! Get bidding to win fantastic prizes and support those living with inherited sight loss.

Aavantgarde Bio Ush1B study at Moorfields

• News

Promising early clinical trial results suggest that ATSN-201, an investigational gene therapy for X-linked retinoschisis (XLRS), could offer a potential new treatment approach for this rate inherited retinal condition.

• News
• Retinitis pigmentosa

Please find below a research opportunity for people with confirmed stargardt disease.

• News
• Stargardt disease