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The content on this site will have answered some of your queries about inherited sight loss and associated syndromes, but everyone’s circumstances are different and you may have further questions.

Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.

• e-Newsletter
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James Birtley is a Retina UK supporter and volunteer who is living with retinitis pigmentosa. He is also a scientist with a particular interest in the structure of proteins, the complex molecules that form the building blocks of our bodies.

• News

Retina UK has joined with more than 80 disability charities who have today written to the Chancellor calling for urgent support with the cost of living for disabled people.

• News

For almost 50 years, Retina UK has funded the best science, searching for genes and treatments for everyone living with inherited retinal dystrophies (IRDs). Support the search for treatments for everyone and join our campaign to build the ultimate Gene Team of tomorrow.

Different inherited sight loss conditions present noticeable symptoms at different times.

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Join #TeamRetinaUK for the iconic 2023 TCS London Marathon! Soak up the incredible atmosphere as you run from Blackheath to The Mall finish line where you’ll get your very own marathon medal.

• Run
• London

Join #TeamRetinaUK for the iconic 2025 TCS London Marathon! Soak up the incredible atmosphere as you run from Blackheath to The Mall finish line where you’ll get your very own marathon medal.

• Run
• London

Celebrate the life of your loved one, by donating in their memory and help us fund more research and support, now.