New Chair of Trustees
We are delighted to welcome Kathy Evans as our new Chair of Trustees.
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Virtual delegate bag
A virtual delegate bag for our online attendees - Professionals' Conference 2024
How we can support you in your role
Whether you are a professional looking for practical information for yourself, or practical or emotional support for your clients, online, by phone or face-to-face, we're here to help. All of our services are free to access and offered in a range of accessible formats.
Online information & support
Retina UK has a number of online support resources which we offer via social media.
About Unlock Genetics
The aim of the site is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.
ProQR announces suspension of LCA10 and USH2A clinical trials
Biotechnology company ProQR has announced that its clinical trials of sepofarsen for Leber congenital amaurosis type 10 and ultevursen for USH2A-mediated retinitis pigmentosa will be wound down with immediate effect.
Parents & Carers Peer Support Group
Thursday 28 November, 7.00pm - 8.30pm - via Zoom - Are you a parent or carer of a child living with an inherited retinal dystrophy? If so, we invite you to our first Parent & Carer Peer Support Group meeting.
Research update – ProQR
In February 2022, ProQR announced a disappointing outcome for their phase 2/3 trial of sepofarsen for Leber congenital amaurosis type 10 (LCA10).
Corporate partnerships
Our partnerships are mutually beneficial. For Retina UK this means we can fund more research and offer support on a local level, while our partners can achieve corporate social responsibility objectives whilst making a tangible impact.