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Friday 23 May, 5.30pm - 9.30pm - In-person - Come and join Bhavini and the group for their latest outing to see an audio described performance of The Play That Goes Wrong at the Duchess Theatre in London.

• Local Peer Support Group

Thursday 29 May 2025, 7.00pm - 8.00pm - via Zoom - To celebrate National Creativity Day in May we are delighted to be launching this brand new interest focused peer support group.

• Local Peer Support Group

We are delighted to welcome Kathy Evans as our new Chair of Trustees.

• News

A virtual delegate bag for our online attendees - Professionals' Conference 2024

Thursday 8 May, 7.00pm - 8.30pm - via Zoom - Following on from the successful launch of our new Women's Peer Support Group back in March we are pleased to invite you to join us for our second online social get together.

• Local Peer Support Group

Prof Mariya Moosajee at Moorfields Eye Hospital has asked us to share the message below about the clinical trial she is running. This trial is for a treatment that targets a particular section of the USH2A gene.

• News
• Usher syndrome

Our community is informed and knowledgeable about current research projects into the cause(s) of and treatments for these conditions.

As part of our aim to nurture young scientists, we are very pleased to introduce one of our new PhD students as part of a co-funding agreement with the Macular Society.

• Case study - research
• Written

Fundraising for Retina UK means a lot to me - both my dad and my nephew have been affected by inherited sight-loss, and I've seen first-hand the incredible work this charity does.

• Case study - supporter
• Written

Introducing Splice Bio, a genetic medicines company with some exciting developments for Stargardt’s patients.

• News
• Stargardt disease