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Our community are the reason we are able to continue supporting those with inherited sight-loss conditions through research and practical support.

Martin's son was diagnosed with Stargardt’s at a young age which has led Martin to take a close interest in the progress of research into Retinal disease.

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Our Medical Advisory Board (MAB) advises our Board of Trustees in order that they can approve grants for research projects.

Many inherited sight loss conditions occur when cells in the retina, which is the light-sensitive region at the back of the eye, deteriorate in an unpredictable way. These conditions are often referred to as inherited retinal dystrophies.

These frequently asked questions should provide a response for most of the queries you might raise.

Inherited progressive sight loss is caused by a range of rare genetic conditions. We specialise in those which affect the retina.

Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.

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Different inherited sight loss conditions present noticeable symptoms at different times.

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Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.

• e-Newsletter
• Audio
• Written

A general overview of the clinical trials process and practicalities, including issues to consider if you are given the opportunity to take part.

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