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Saturday 22 August 2026, 1.00pm - 7.00pm - In-person - Come and join Colin and the group at the Tyneside Irish Centre for their latest in-person event in Newcastle.

• Local Peer Support Group

Despite the challenges of the pandemic, researchers and pharmaceutical companies are still making progress towards delivering new treatments for inherited sight loss.

• News
• Leber congenital amaurosis (LCA)

There are many ongoing clinical and laboratory studies around the world, exploring innovative approaches to treating inherited sight loss.

• News

Sepul Bio begins clinical trial of ultevursen for USH2A-associated RP

• News
• Retinitis pigmentosa

In recent years there has, understandably, been a lot of excitement around cutting-edge therapies that target the specific genetic faults underlying inherited sight loss.

• News

We are proud to work collaboratively with a number of corporate partners to enable our community to live fulfilled lives today as well as supporting the pharmaceutical industry in their mission to develop potential new treatments.

Inherited retinal dystrophies (IRDs) are the leading cause of blindness in working-age people in the UK, and children as young as eighteen-months are regularly diagnosed.

Our monthly e-Newsletter featuring the latest updates from Retina UK.

• e-Newsletter
• Audio
• Written

Our monthly e-Newsletter featuring the latest updates from Retina UK.

• e-Newsletter
• Audio
• Written

Colin was born in Dumfries and now lives near Glasgow. He is living with Usher syndrome, a dual sensory loss condition affecting his eyes and his hearing. He and his wife, Lyn, both have guide dogs: Jumble and Yozi.

• Case study - Ambassador
• Written