Search Results for “Case study - supporter” - Page 17

Meet a Researcher: Dr Nikolas Pontikos

Dr Nikolas Pontikos is a Senior Research Fellow at UCL Institute of Ophthalmology, and has been working on inherited retinal conditions for several years.

Steve Goulden on the left of the image and Khadeja Ali on the right

Meet our volunteers: Steve and Khadeja

Steve has been volunteering for Retina UK since its formation in 1976 and has been a part of the Helpline team since the early 1980s.. He remembers very well a caller named Khadeja, who called the Helpline multiple times, following her diagnosis with RP in 1999.

Meet our volunteers: Dr Katerina Tavoulari

Katerina joined the Retina UK team at the start of 2023 after hearing about the charity through her involvement in a research project at the University of Bath, where she works as an academic.

Meet our volunteers: Daniel Summers

Dan found out he had retinitis pigmentosa in February 2022, but he feels it has been “on cards for years”. He said he had “an inkling something was up but never did anything about it: a typical guy I guess!”

Graeme Ives running in a desert landscape

Graeme Ives: 6 marathons in the Sahara Desert for Retina UK

Graeme's son is living with retinitis pigmentosa and he has decided to take on an extreme challenge - running 250km across the Sahara Desert, with 6 stages, varying in length from 21km to 82 km, over 7 days.

A young girl wearing sunglasses and a Retina UK t-shirt.

Rose Earnshaw: An inspirational 8-year-old’s epic challenge

In August 2025, 8-year-old Rose Earnshaw is taking on a challenge like no other – completing 5 laps of her local village park (1 mile) every day throughout the month of August, in support of Retina UK’s vital work.

Meet our Ambassador: Colin Hetherington

Colin was born in Dumfries and now lives near Glasgow. He is living with Usher syndrome, a dual sensory loss condition affecting his eyes and his hearing. He and his wife, Lyn, both have guide dogs: Jumble and Yozi.