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Does gene therapy always have to be gene-specific?

Early 2020 marked an important milestone for the Retina UK community, when the first person with an inherited retinal condition received NHS treatment to potentially slow or even stop the progression of their sight loss.

Retina UK Sight Loss Survey 2025 Findings from our survey of over 600 people living with inherited sight loss. June 2025

Every experience counts: Insights from our sight loss survey

A huge thank you to everyone who completed our 2025 sight loss survey. This year we received over 600 responses. It follows similar surveys in 2019 and 2022 which led directly to the introduction of our Unlock Genetics and Discover Wellbeing resources, as well as shaping our work with the professional community who support people with inherited sight loss.

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Applying for research funding

We provide funding for innovative, high quality research projects investigating the causes and potential treatments for all forms of inherited retinal disease.

Complaints Policy

We always aim to provide a high standard of service to our community. If you are unhappy with any of our services it is important that you let us know.

Volunteering FAQs

These are some of the most commonly asked questions about volunteering for our charity.

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Our Partners

We are proud to work collaboratively with a number of corporate partners to enable our community to live fulfilled lives today as well as supporting the pharmaceutical industry in their mission to develop potential new treatments.

Supporter stories

Our community support us in many different ways, from completing surveys, volunteering, raising awareness and fundraising.