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Rod-cone dystrophy
Rod-cone dystrophy is an umbrella term used to describe retinal conditions in which the rod-shaped photoreceptors, found mainly in the peripheral areas of the retina, degenerate ahead of the cone-shaped photoreceptors in the centre.
Rare syndromes
These very rare syndromes(NARP, Bassen-Kornweig, PXE, Norrie) affect the eyes as well as other parts of the body.
Charles Bonnet syndrome
Charles Bonnet syndrome (CBS) causes people who have lost a lot of sight to see things that aren’t real (hallucinations).
Bassen-Kornweig syndrome
In this condition, retinitis pigmentosa is accompanied by progressive neurological problems, abnormal red blood cells (acanthocytosis) and defective bowel absorption of fat, leading to very low blood levels of cholesterol and absent beta lipoprotein (Abetalipoproteinaemia).
Bardet-Biedl syndrome (BBS)
Bardet-Biedl syndrome (BBS) is an inherited condition which impacts many parts of the body including the retina.
Retina UK Day 2024
Come together for Retina UK Day on Thursday, 10 October 2024 and help us raise awareness and funds for those who are living with inherited sight loss.
Brighton Marathon 2024
Take on the Brighton Marathon with a seaside finish!
5K A Day In May 2024
May is National Walking Month! Are you ready to join #TeamRetinaUK in May for our brand new daily 5K challenge? Your support will allow us to continue supporting those who are living with inherited sight loss.
Run Locally
As well as many of the well known races, we also have places available in hundreds of local runs. Wherever you live, you can run as part of #TeamRetinaUK!