Involving our community
Our community is informed and knowledgeable about current research projects into the cause(s) of and treatments for these conditions.
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Sirius clinical trial – Exon 13 mutation of USH2A
Prof Mariya Moosajee at Moorfields Eye Hospital has asked us to share the message below about the clinical trial she is running. This trial is for a treatment that targets a particular section of the USH2A gene.
National Peer Support Group
Thursday 16 July 2026, 7.00pm - 8.00pm - via Zoom - Please come and join us for our Summer meeting where we are delighted to welcome our guest speakers Bhavini Makwana and Eamonn Dunne, Policy & Campaigns Managers at Thomas Pocklington Trust.
‘Talking’ Tech Peer Support Group
Tuesday 14 July 2026, 7.00pm - 8.00pm - via Zoom - Please come and join Anna & Ellie for our latest meeting where we are delighted to welcome our guest speaker Ellis Ellis from Vision Aid who will be giving a live audible demo of some of their products.
New Chair of Trustees
We are delighted to welcome Kathy Evans as our new Chair of Trustees.
Women’s Peer Support Group
Tuesday 28 July 2026, 7.00pm - 8.00pm - via Zoom - Please come and join Perm & Danielle for their latest meet up where we are delighted to welcome our inspirational guest speaker Emma Jayne Basudev who will be talking to us about mindfulness.
RP Awareness Month – Paul’s Story
During RP awareness month, Paul Bacon has shared how his diagnosis has impacted his life and shared messages about how non visually impaired people can support those living with inherited sight loss. To learn more about inherited sight loss please take the time to read Paul's story.
Meet our supporters: William Taylor
Fundraising for Retina UK means a lot to me - both my dad and my nephew have been affected by inherited sight-loss, and I've seen first-hand the incredible work this charity does.
Meet a researcher: Chloe Brotherton
As part of our aim to nurture young scientists, we are very pleased to introduce one of our new PhD students as part of a co-funding agreement with the Macular Society.
Slowing sight loss in stargardts: Ocugen’s gene therapy trial offers promising early results
Ocugen’s gene therapy candidate, OCU410ST, is an experimental treatment designed to slow vision loss in Stargardt disease, an inherited retinal disease (IRD) with no approved therapies currently.