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Our community is informed and knowledgeable about current research projects into the cause(s) of and treatments for these conditions.

High quality information on genetic testing and counselling for families affected by inherited sight loss is now available in one place thanks to the launch of an innovative new website, Unlock Genetics.

• News

The Retina UK Annual Conference will be held on Saturday 28 September. You can join the Conference in-person or online.

• Conferences
• Online

Russ was diagnosed with Choroideremia at the age of 11, after visiting caves in Spain and not being able to see anything.

• Case study - community
• Written

This stunning central London half marathon, takes in some of the capital’s world-famous landmarks on closed roads.

• Run
• London

The Spring 2023 edition of the Retina UK newsletter, Look Forward, which includes articles about our upcoming events, research updates and more.

• Look Forward
• Audio
• Written

Fancy fundraising for Retina UK? Here’s a few pointers to help get you started.

Find out about our upcoming events. Whether you're looking for a webinar, a local peer support group or you're hoping to run a marathon, we've got something for you.

Our sight loss survey highlighted that you have a real appetite to get involved in representing the inherited sight loss community through activities like focus groups, surveys and research projects via the Retina UK Lived Experience Panel.

We have created Discover Wellbeing to help people affected by inherited sight loss to develop an awareness of emotional wellbeing and the practical skills to adapt to life’s ups and downs.